What is Spina Bifida?

Spina Bifida is the number one permanently disabling birth defect in the United States. There are approximately 70,000 people in the United States living with Spina Bifida. Spina Bifida is a neural tube defect (NTD) and occurs when the central nervous system (brain and spinal cord) does not form properly during the early stages of pregnancy. The exact cause of Spina Bifida is unknown, however over the last decade, medical research has confirmed a link between a woman's folate level before pregnancy and the occurrence of Spina Bifida and other neural tube defects.

Sixty million women are at risk of having a child born with Spina Bifida and each year approximately 4,000 pregnancies in this country are affected by Spina Bifida, resulting in 2,500 births. Recent studies have shown that if all women of childbearing age were to consume .4 mg of folic acid prior to becoming pregnant and throughout the first trimester of pregnancy, the incidence of Spina Bifida could be reduced by up to 75%.

What conditions are associated with Spina Bifida?

The effects of Spina Bifida vary widely from individual to individual. Spina Bifida is a medically complex birth defect affecting the orthopedic, urological and central nervous system. Many secondary conditions arre associated with Spina Bifida including full or partial paralysis, further neurological complications, hydrocephalus, bladder and bowel control difficulties, learning disabilities, depression, latex allergy, and social and sexual issues.